Maeve Boothby O’Neill died because of a discredited view of ME. How was this allowed to happen? | George Monbiot
Chronic fatigue syndrome is as physiological as a broken leg. For the sake of those who have it, we must learn all we can from this tragic case
How could this happen in the 21st century? This question could apply to many issues, but this one sends you reeling. A brilliant and lively young woman with a common illness was repeatedly disbelieved, dismissed and given inappropriate treatment, until she starved to death. It is a terrible result of the most remarkable situation I’ve ever encountered in either medicine or journalism.
Last week, the coroner at the inquest into the death of Maeve Boothby O’Neill published her damning report on the prevention of future deaths. Maeve was suffering from myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), a condition afflicting hundreds of thousands in the UK. ME/CFS robs those who have it of energy. Severe cases can shut down every aspect of their lives.
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